Friday, August 31, 2018

Thankful

Meghan, Tim's Care Coordinator, called me and left a message on our voice mail today.  I had spoke with her this morning regarding Tim's possible move to Rush.  The move is on hold!!!!  She said PT is going to reevaluate him on Tuesday.  If he's doing well walking, he will be staying at his home in Newark for now.  Praying that he walks well. :)

Confused

So on Tuesday while I was at work, Renee from DDSO called.  She left a message on my voice mail about moving Tim to a house in Rush... because he isn't walking well (she says), and it's a dire emergency to move him at this time.  There are a few problems I have with this.  The house is NOT a home.  It looks uncared for and uninviting from the outside, just a dull place in the middle of nowhere.
The inside leave much to be desired as well.  It's large, echoey, and cold, and I don't mean just the temperature, but the whole look.  To top it off, I was told by someone that the residents there are low functioning.  My brother is not.  Of course, my sisters and I are against the move, but it's being forced.  I was on speaker phone Wednesday morning with Renee, Kim, and Wes King, all trying to persuade me of how badly Tim needs this "for his own safety".  BUT every time we see him he's walking great, and I told them this.  It was to no avail though, as I was once again told that he trips over the thresh hold, can not do the stairs easily, and shuffles his feet, causing someone to need to walk with him at all times.  I ended up in tears, and decided to pop in on Tim for a visit later that afternoon.  When I got there, he was having a fit as Erin was putting a Depends on him so that he could go for a ride with me...I have them do this because he has wet my car seat on a few occasions.  She hadn't told him I was coming because I had failed to say exactly when I was going to be there, and she didn't want to overly excite him.  When he saw me, he instantly settled, grabbed my hand, and we were off!  He had no trouble walking, in fact he practically ran down the front steps, his hand in mine.  Once again I was failing to see his difficulty walking, and the emergency to move him out of the home he has known for 20 years, aside from a 3 year stint in a house across the street when he was put on a med that suddenly took away his ability to walk on his own.  "Is he on a new medication?", I had asked at the time.  "Nope, nothing new", I was told.  Very shortly after he was moved his ability to walk suddenly came back.  When I inquired as to why he had lost his ability to walk and then regained it as if nothing had ever happened, I was told, "We took him off of the new medication".  But I thought he wasn't on a new med?  We had been lied to.  They moved him back into his home 3 years later when an opening became available, but a few short months later he "tripped over the leg of a chair" and walked with a limp after hurting his lag when he fell.  Since that time they have said his walking has gotten worse and worse....although we don't see a problem at all.  I have been told he has "Athritis in his spine" and "He has a drug induced Parkinson like disorder that's only going to get worse". "He's not on any new meds", we are told once again.  I did talk to Tim about the whole situation as we drove down the country roads through Yates County.  I told him that we don't think the Rush house is a good move for him, and he told me he doesn't want to move.  Upon our return back to his home, he took off for the bathroom (unassisted) to remove his Depend, and came back to the kitchen (unassisted) to usher me toward the door.  He did not shuffle his feet or seem unsteady.  I'm thinking they want to move him to make room for someone else.  We are praying that God allows him to stay where he is until something opens up with Heritage homes.  I wish they would return my calls.
This is us a couple of weeks ago on our visit.  I love him,

Saturday, August 04, 2018

Pondering...

After hearing he had a bad day the day before, yesterday I went to see my brother.  He had a purple, swollen ear from hitting himself, bruised cartilage, they said.  He excitedly took my hand and we walked out to the car together.  I hadn't even had a chance to sign him out yet.  As we walked out to the car I asked him what was bothering him, but got no response.  I'm used to it. That's normal for him, he's autistic. We got in the car, and he ate the treats I brought for him...a banana, some peanut butter pretzel bites, and Oreo thins.  As I drove along the country roads, we listened to a CD of my dad playing his guitar and harmonica.  Tim cried off and on, which means I did too.  At the end of our ride we stopped at Wendy's to get a small chocolate Frosty.  As usual, he ate it at warp speed.  After he's finished I usually take him home, but I had brought my tablet to see if I could get him to "talk" to me on it. (I haven't done that in a long time because he doesn't usually do anything with it) I asked him what was wrong as I handed him the tablet.  He looked at the screen and swirled his finger around on it, without actually pushing the separate letters, and handed it back to me.  Fully expecting there to be nothing legible on the screen, I read, "home".  I told him what it said and asked him if it was a mistake or if he meant to say that, after all, I had no idea you could write something that way, but I tried it afterwards and found out I learned something new!  He looked me in the eye and said, "Home".  He wanted me to take him home... or so I thought.  Maybe he did, but my sister said that maybe home is what's bothering him.  I was so sure he didn't want to tell me and just wanted me to take him home (and maybe that is the case), but now I need to go back and find out what he meant.  They want to move him to a new home because he's not walking great these days, so maybe he's tired of hearing about it, or dreading it (he was abused at the last one) or something.  In any case, he talked to me, and that is something I always treasure.

Tuesday, March 27, 2018

Reminded how much God loves me this morning...



1
The love of God is greater far
  Than tongue or pen can ever tell.
It goes beyond the highest star
  And reaches to the lowest hell.
The guilty pair, bowed down with care,
  God gave His Son to win;
His erring child He reconciled
  And pardoned from his sin.
O love of God, how rich and pure!
  How measureless and strong!
It shall forevermore endure—
    The saints’ and angels’ song.
2
When hoary time shall pass away,
  And earthly thrones and kingdoms fall;
When men who here refuse to pray,
  On rocks and hills and mountains call;
God’s love, so sure, shall still endure,
  All measureless and strong;
Redeeming grace to Adam’s race—
  The saints’ and angels’ song.
3
Could we with ink the ocean fill,
  And were the skies of parchment made;
Were every stalk on earth a quill,
  And every man a scribe by trade;
To write the love of God above
  Would drain the ocean dry;
Nor could the scroll contain the whole,
  Though stretched from sky to sky.

God Knows You and Calls You by Name


By Rick Warren
“When Jesus came by, he looked up at Zacchaeus and called him by name! ‘Zacchaeus!’ he said” (Luke 19:5 TLB).
All of Zacchaeus’ life, he’d been ridiculed and rejected, first for his appearance and then for his sinful life. But Jesus did more than just look at him. By calling Zacchaeus by name, Jesus showed that he knew him. Imagine the shock Zacchaeus must have felt! How did Jesus know his name?
God not only knows where you are, he also knows who you are. He knows what you’re going through, why you’re going through it, and how you feel about it. He knows you better than you know yourself. He cares about you personally.
The name Zacchaeus means “pure one.” That’s the last thing that comes to mind when you think of a corrupt government official. He was anything but pure. And yet Jesus, calling Zacchaeus by name, was saying, “Hey, pure one, I’m coming to your house today.” Jesus was affirming what he saw in Zacchaeus, not what Zacchaeus was.
You may be afraid to get close to Jesus because you think he’s going to scold you for all the things you’ve done wrong. But Jesus wants to affirm you. He wants to let you know how much he loves you.
“Can a mother forget her nursing child? Can she feel no love for the child she has borne? But even if that were possible, I would not forget you! See, I have written your name on the palms of my hands” (Isaiah 49:15-16 NLT).
When Jesus died on the cross and stretched out his arms and the soldiers put nails through his hands, your name was engraved there. When you get to Heaven, there will be no scars on anyone except Jesus. He’s going to have those scars for eternity to remind us how much he loves us, a way to say, “Do you think I could forget you? Not a chance! This is how much you matter to me.”

Saturday, March 25, 2017

Being Christ

"We exist to be little Christ's, Not Little Ladder Climbers, Not Little Control Freaks, Not Little Convenience Dwellers.  Simply little giving Christ's.  Not ever in a way that's divine, but simply, always, and in every way, disciples.
The term "Christian" means exactly that- little Christ."  -Ann Voscamp


Lord, I am failing.  Please help me to be You to those I come in contact with every day.  Help me to love like You, be patient like You, give like You, be gentle like You, be kind like You, be joyfull in all things, and... to LOVE like You.  I know I already said that, but... thank you.  -Rachel

Monday, January 30, 2017

May my hands be Christ's

"There's more than a thousand ways for Christ to have hands in a busted world so the brokenhearted can find a deeper kind of whole." - Ann Voscamp

Lord, may my hands be yours.  Give me your heart and help me to see others the way you do.  Lead me and guide me where you want me to go.

Saturday, January 21, 2017

Another visit with Tim

Yesterday I picked up Martha and we drove out to Newark for another visit with Tim.  He, like always, was happy to see us and eager to go out for a ride.  He seemed more there today, and when we got in the car I wanted to listen to Dad play his guitar and harmonica on CD for us.  It's like having a little piece of him on our visit, so I said, "Let's find Dad!"  As soon as I said that he looked right at me... probably thought I was a bit crazy.  Along the ride he looked at me and smiled just like he used to.  I love his smile and told him so.  Martha and I chatted on the ride, asking Tim a few questions along the way, but he didn't respond.  I noticed he had a small gash with a fading bruise above his left eye and couldn't help but wonder if he's being treated well... after all, he was being abused by a caretaker (who has been fired) not too long ago, and there is an investigation that is still incomplete.  When we dropped him off at his home he gave me a nice, sweet, tight (but not too tight) hug.  He hasn't given me one like that since our dad died.  Martha had gone to sign him back in, and I felt bad that she missed out.  He's usually in a hurry to get to the bathroom and isn't always so generous with his hugs, but you never know when he'll have a special surprise hug for you... you just never know.

Wednesday, January 18, 2017

Michael's haircut

He wouldn't pose for a photo, but Michael got his hair cut today.  He went to the barber for the 1st time since he was about 8 (he usually either buzzes it with the clippers or Flowbees it.  That's the haircutting machine that hooks up to a vacuum cleaner.) He had grown his hair so long, and he has so much of it that it was just too much.  He said he wanted to do something a little different with it.  He told the barber to leave it longer on the top.  He reminds me so much of my dad with this haircut.  Now when he pushes his food around on his plate while he's talking over dinner tonight, he will remind me even more of my dad than ever. :)